Some Thoughts On Steve Gleason And His Fight With ALS
Amyotrophic lateral sclerosis is one of the most heinous diseases this planet has to offer the human race. The victim's nerve cells slowly waste away or die, rendering the brain unable to communicate with voluntary muscles; the muscles consequently wither over the course of years until they become useless. Walking, talking, swallowing, breathing ... all deteriorate until eventually -- usually within five years of diagnosis -- paralysis sets in as the victim loses all muscle function and suffocates to death.
While medication and therapy can prolong life for a few extra months, there is no cure for ALS.
For days, I've been unsure how to treat the news of Steve Gleason's illness. I wrestled with whether to write those first two paragraphs. I don't think any of us want to picture all of those things happening to Gleason. I certainly would rather think of him blocking a punt in the reopening of the Superdome, or recall him outplaying his size for the 1997 Pac-10 champions (and some pretty crappy WSU teams after that). It's easier just to think, "Gosh, that's terrible," say a passing prayer, and continue to remember him the way we want to remember him until the seemingly inevitable happens.
Gleason doesn't have that luxury. Neither do his wife, or his unborn child.
And neither do you, if you have the courage to watch this video. I cried as I watched Gleason struggle to walk out to midfield as an honorary captain on Sunday, then weakly hold one arm in the air to lead Saints fans in the traditional "Who Dat" chant, then hold on to Drew Brees' elbow as he made his way to the sidelines. He was diagnosed with the disease in January, and it's clear that ALS already has started to do what it does. It's hard to see him like that. It's uncomfortable as hell.
But when the cameras are gone and everyone goes back to their everyday life, Gleason will still be living that reality: The reality of a man who is just 34 years old -- six days younger than me -- and staring death in the face.
I don't pretend to know Steve Gleason personally, although I interviewed him a handful of times when I covered the football team as a student. But given what I do know, I'm pretty sure he wouldn't want me to cry for him. That's not his style. Steve Gleason is a doer, a man who willed his way into an eight-year NFL career as a special teams player despite going undrafted.
Be a doer yourself. Visit Team Gleason's website. Learn about ALS, and figure out a way to contribute to finding a cure, even if it's something as modest as buying a "Better Now Than Never" T-Shirt. If you really want to go for it, make a donation to the ALS Association.
But don't let this moment pass you by. Join Gleason in his fight to become one of the small, small percentage of people who experience remission from the symptoms of ALS. Stand by a great Coug, and a better human.
EDIT: Please also consider donating to the ALS Therapy Development Institute, an organization that is already working with Gleason and to which he has linked on his website. They invest heavily in research for a cure.
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Thanks for the youtube link...
I had been searching for that, but of course espn.com and si.com only gave info on the game itself. I’ve been unable to get this story out of my head all week. We (yourself, Steve, and I) are all of the same “late 90’s” Coug era… which makes it a little easier to try and picture yourself in his shoes. The video diary he’s putting together for his baby is just absolutely gut wrenching. Most of us in the mid-30’s age are starting our own families and either have young kids or are planning on it. Having to prepare his family for what’s about to happen is unfathomable to me. Football success be damned. That man’s composure, courage, and overall outlook on life display a character that is as inspiring as I’ve ever seen.
by X-Capitan on Sep 29, 2011 11:02 AM PDT reply actions 2 recs
I couldn't even to begin to imagine what Steve and his family is going through right now.
Go Gleason
Attractive, Intelligent, Smart A**
by Neil Vincent Roberts on Sep 29, 2011 11:55 AM PDT up reply actions
just ordered my t-shirt
that’ll be my tailgating uniform for the rest of the year.
by BigWood! on Sep 29, 2011 12:42 PM PDT reply actions 3 recs
Rec'd
and idea copied
I miss *REAL* Four Loko
by B-Lot tailgater on Sep 29, 2011 2:14 PM PDT up reply actions
My uncle died of ALS about 10 years ago.
My son is named after him (his middle name, anyway), and watching someone you’re super close with go through this is one of the worst things I’ve ever had to experience.
Like Gleason, my uncle was extremely active. He lived in Alaska with his two sons who were the same age as my brother and I. Out of all my cousins (and I have a ton, my dad had 5 brothers and sisters, and my mom has 3), we were closest to them. We frequented Alaska, where I was born and my parents met, and did all the typical outdoorsy type stuff. Leading the way on a hike, convincing us to go White Water Rafting, waking up early to get the fishing gear together, was always my uncle.
Having someone literally wither away and die in front of your eyes is impossible to describe and equally impossible to get over. I lost my father about 5 years ago, and it happened suddenly. I don’t know how much worse it was for my cousins and my aunt, because they were there every single day.
The most frustrating thing about this is his brain is still functioning like normal. He can think “Ok, say this or say that” and it takes his mouth muscles and tongue much longer to slur out the words. My uncle wound up confined to a wheelchair, and most people assumed he was mentally retarded. He often would lose the ability to keep saliva in his mouth, and would drool uncontrollably. I remember never feeling more angry in my entire life getting those looks, and wanting to punch people in the face for snickering.
It’s a sad day not because Gleason is a Coug, but rather, because Gleason is a fantastic human being. I’d be shaken up if I heard the guy three blocks away from me who I didn’t know was diagnosed with ALS. This disease proves that life isn’t fair, and I hope the next time you all have a drink, you stop, take a moment, say a little something, and raise your glasses to this brave, brave man. His family welcomes your positive thoughts.
God speed, Steve Gleason.
by Kyle Rancourt on Sep 29, 2011 1:58 PM PDT reply actions 7 recs
This caught my eye on the SB Nation ticker
because I have a personal history with ALS. My grandfather was diagnosed with it in the mid-70s. God has smiled upon him and he is in the extremely small percentage of people who live with it longer than 5 years. In fact, he is still alive and well (all things considered) today. He is truly a living miracle and my personal hero. Despite this, the disease has slowly, but devastatingly, taken its toll. However, THERE IS HOPE for all those diagnosed with this horrible disease, and my grandfather is living proof. The medical community is making large strides with ALS, especially in recent years. I am a member of the South Texas chapter of the ALS Association and I encourage everyone to research a local chapter nearest to you. I really believe that, in my lifetime, the quality of life for ALS patients will greatly increase due to organizations like ALSA.
Thanks a lot for this post, and good luck to Gleason and his family.
BEVO IS ANGRY!
Steve and his family have been in my thoughts since Sunday
I lost my grandma to ALS 12 years ago, 5 days after graduating high school. Not a day goes by that I don’t think about her and miss her. She never got to see my go to college, get married, or meet my boys. I wish I had been able to handle her declining health and death with even half the courage that Steve and his family have. I’m not a religious person, but I’m saying a prayer for him.
So sad to hear about gleasons battle with ALS
My heart goes out to steve and his family. I’ve lost many family members to this horrible disease. In today’s world there is no reason why there should not be a treatment for ALS. The problem is awareness and funding for research. I donated for 15 years to the ALS association (alsa) and stopped after realizing very little $$$ go toward research. Please please keep raising awareness and donate to organizations dedicated 100% to research and finding treatments and ultimately a cure- such as ALS TDI
Www.als.net

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